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I wish I knew
The night before Claire was born, I wish I knew that she was going to be born alive. The day that we were given Claire’s diagnosis of Cri Du Chat Syndrome, I wish I knew that this diagnosis was going...
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My startup disk is nearly full
I have been cleaning out old files on my computer this evening due to the arrival of that pesky Mac warning, “Your startup disk is nearly full”. I had to delete a significant amount of files to free up...
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Let’s Get Claire to Kindy
When Callum turned 4, he started at Kindy. I packed his lunch, labeled all his belongings, and dropped him off after about 15 minutes in the room. He was happy, I was happy, and I knew his needs would...
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How to help get Claire to Kindy
People are contacting us asking how to help, and we are very grateful! The short answer: Share, share, share our posts and links on Social Media (and ask your friends to do the same). This truly has a...
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Editing is Exhausting
People often tell me how amazing I am, and how well I ‘handle’ all of the responsibilities that come with being mum to Claire. They ask how on earth I find the time to advocate for her needs, but the...
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The Gift of Stella
The hardest part of this journey by far has been having our eyes opened wide to the fact that life is not always fair. There is nothing fair about illness that debilitates a child, or that takes their...
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How to help get Claire to Kindy
Originally posted on Claire Matilda: People are contacting us asking how to help, and we are very grateful! The short answer: Share, share, share our posts and links on Social Media (and ask your...
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Term one is done!
I have been really terrified to celebrate too soon, the success that kindergarten has been for Claire. Our family, friends and extended community have funded this, and so many people have been ‘in our...
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Do you know?
Do you know I have a daughter, who is worth her weight in gold, Do you know the things I wondered? All the stories I was told? Do you know how often tears fell as I gently felt her kick? Do you know...
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Family Weekend and Conference 2015
This week I have been trying to cross a few things off my very long ‘to-do’ list, and writing about the family weekend and conference we recently experienced has finally been given a few moments space....
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